Your privacy is important to the “National Down Syndrome Society (“NDSS”) and our affiliates using DonorDrive® for their online registration and fundraising needs. We have developed this website privacy policy ("Privacy Policy") that covers how we collect, use, disclose, transfer and store your information. Please take a moment to familiarize yourself with our practices relating to privacy.

NDSS is committed to protecting your privacy. This Privacy Policy applies to the NDSS family of websites beginning with the URL: www.ds.donordrive.com/ (collectively "Websites") and governs data collection and usage. By using these websites, you consent to the data practices described in this Privacy Policy.

Please read this Privacy Policy in its entirety to understand how NDSS and our affiliates using DonorDrive® will handle the privacy of personal information that you provide through the Websites or through the use of the online NDSS and/or affiliate Web portals. Unless otherwise specified, this Privacy Policy does not describe how NDSS and/or our affiliates may handle your personal information in offline situations, which may be affected by additional privacy policies of NDSS and/or our affiliates not inconsistent with this Privacy Policy.

Please remember that this Privacy Policy applies only to information collected by our own Websites. We are not responsible for the privacy practices of websites that are operated or owned by third parties. Links to other third-party websites, including those of our corporate supporters and partners, can be accessed from our Websites. Please be advised that the privacy policies of those third-party sites may not be consistent with this Privacy Policy.

NDSS and/or our affiliates using DonorDrive® may use and disclose the information that you provide through the Websites or through the Web portals only for purposes permitted or required by law, for purposes described in this Privacy Policy, or for purposes which you might authorize. If you do not wish NDSS or our affiliates using DonorDrive®  to use or disclose information that you provide through the Websites as described in this Privacy Policy, you should disconnect from the Websites.

NDSS may change this Privacy Policy at any time and from time to time for any reason, including to address new functionality or changes to this Website or to the NDSS Web portals, or to address new issues that require changes to this Privacy Policy. Please refer back to the Privacy Policy regularly, because your use of the Websites and/or the NDSS Web portals signifies that you agree to be bound by this Privacy Policy, as it might be amended from time to time.

We will alert you to changes in this website Privacy Policy by sending you an email at the last email address that you provided us, and/or by prominently posting notice of such amendment on the Websites covered by this Privacy Policy. Please note that, at all times, you are responsible for updating your personal information to provide us your current email address. In the event that the last email address that you have provided to us is not valid, or for any other reason is not capable of delivering to you the notice described above, our sending of the email containing the notice of amendment will nonetheless constitute effective notice.

What Information Does NDSS Collect?

In several areas of the Websites NDSS and/or our affiliates using DonorDrive® collect personally identifiable information, such as your name, home address, email address, and telephone number.

NDSS and/or our affiliates using DonorDrive®  also collect anonymous demographic information, which is not unique to you, such as your ZIP code, age, gender, preferences and favorites.

We may collect information about your interaction with the Websites. For example, we may use web site analytic tools on the Websites to retrieve information from your browser, such as the site you came from, the search engine(s) and the keywords you used to find the Websites, and the pages you view within the Websites. We will also use technologies, such as cookies and web beacons (both described below), to collect information about the pages you view, the links you click and other actions you take on the Websites. Additionally, we collect certain standard information that your browser sends to every web site you visit, such as your IP address, browser type and language, access times and referring web site addresses.


Any of our sites that are directed to children under the age of 13 comply with the standards of the Children's Online Privacy Protection Act (COPPA), which are in addition to this Privacy Policy.

Is My Personal Information Secure?

We provide Website visitors with a secure experience when making a donation or purchasing merchandise through our Websites. When personal information is transmitted by NDSS or our affiliates using DonorDrive® to other websites, it is protected through the use of industry standard security technology, such as the Secure Socket Layer (SSL) protocol. To further enhance security, stored donation and order information is also encrypted to prevent unauthorized access to the data.

Although we use industry standard safeguards to secure the privacy of your personal information, transmissions made via the Internet cannot be made absolutely secure. Users should use special caution when using publicly accessible computer terminals or transmitting personal information over unsecured wireless networks.

In addition, on certain Website pages we offer visitors the opportunity to provide comments or other user-generated content on blogs and articles. Any information that you disclose when posting a message to these areas, along with the screen name or ID used, becomes public. We are not responsible for any personally identifiable information that you choose to disclose in the public areas of our Websites.

How Do NDSS and their Affiliates Use Your Personal Information?

Except as expressly set forth in this Privacy Policy we will not willfully disclose your personally identifiable information to any third party without first receiving your permission.

NDSS and/or our affiliates using DonorDrive® collect and use your personal information to operate deliver the services you have requested. We may use personal information collected on our website to circulate news about NDSS, our affiliate groups and their programs, to promote events, to acquire new members and subscribers, and for other internal marketing, promotional and NDSS or affiliate fundraising purposes.

A visitor who receives email from us may opt out of email at any time by following the opt-out instructions contained in the email, or by sending an email to buddywalk@ndss.org.

Unless stated otherwise, NDSS or our affiliates using DonorDrive® do not sell, rent or exchange personal information collected on our website with non-affiliated third parties.

NDSS or our affiliates using DonorDrive® may, from time to time, share personally identifiable information, including email and home addresses, with carefully selected partners, for example, as may be required to offer and market products, programs, and services which benefit NDSS or our affiliates using DonorDrive®. These corporate partners are required to (i) protect the privacy of your Personally Identifiable Information, and (ii) not use or disclose your Personally Identifiable Information for any purpose other than providing the programs, products or services for which we contracted. If you do not wish to receive communications from those partners, you may opt out by sending an email to buddywalk@ndss.org.

We may employ independent contractors, vendors and suppliers (collectively, "Outside Contractors") to provide specific services and products related to our Websites such as to help us perform statistical analysis, send you email or postal mail, send email or other messages on your behalf (such as issue advocacy emails to legislators), or arrange for deliveries. All such third parties are prohibited from using your personal information except to provide the contracted services to NDSS or our affiliates using DonorDrive® and they are required to maintain the confidentiality of your information. These Outside Contractors may sometimes have limited access to information collected on our websites, including your Personally Identifiable Information, in the course of providing products or services to us.

Access to your Personally Identifiable Information by these contractors is limited to the information reasonably necessary in order for the Outside Contractors to perform their limited function for us. We also require that these Outside Contractors (i) protect the privacy of your Personally Identifiable Information consistent with this Privacy Policy, and (ii) not use or disclose your Personally Identifiable Information for any purpose other than providing us with products or services for which we contracted.

We may share aggregated demographic information with our funders, such as grant-making organizations and foundations, for the purpose of demonstrating that we are meeting our organization goals.

NDSS or our affiliates using DonorDrive®  may release personal information if we believe that the law or legal process served on us require it, to protect and defend the rights or property of NDSS or our affiliates using DonrDrive®, or in an emergency, to protect the personal safety of an identifiable visitor or the public.

Becoming a Registered User and Subscription

In order to access certain areas on our Websites, you must first complete certain steps to become either a registered user or a subscriber. During these steps, you may be required to provide us with information (including Personally Identifiable Information) such as name, ZIP code and email address. This information is used to help us understand who uses our Websites, to operate and improve our Websites, and to deliver the services or carry out the transactions you have requested.

How Does NDSS Use Cookies?

The NDSS website uses "cookies" to ensure the integrity of the registration process and to help you personalize your online experience. A cookie is a text file that is placed on your hard drive by a Web page server. Cookies cannot be used to run programs or deliver viruses to your computer. Cookies are uniquely assigned to you, and can only be read by a web server in the domain that issued the cookie to you.

No personal information is ever stored in a NDSS cookie even if you have entered your name or email address on other parts of the Website.

One of the primary purposes of cookies is to provide a convenience feature to save you time. The cookie tells the Web server that you have returned to a specific page. For example, if you personalize NDSS or affiliate web pages, or register with a NDSS or affiliate Web site or services, a cookie helps NDSS or our affiliate recall your specific information on subsequent visits. This simplifies the process of recording your personal information, such as billing addresses, shipping addresses, and so on. When you return to the same NDSS or affiliate Web site, the information you previously provided can be retrieved, so you can easily use the NDSS or affiliate features that you customized. To protect our visitors, cookies do not save payment or credit card information. You have the ability to accept or decline cookies. Most Web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. If you choose to decline cookies, you may not be able to fully experience the interactive features of the NDSS or affiliate services or Websites you visit.

How Does NDSS Use Web Beacons?

NDSS web pages may contain electronic images known as web beacons - sometimes called single-pixel GIFs - that may be used to assist in delivering cookies on our sites and allow us to count users who have visited those pages and to deliver services. We may include web beacons in promotional e-mail messages or our newsletters in order to determine whether messages have been opened and acted upon.

NDSS may also employ web beacons from third parties in order to help us compile aggregated statistics and determine the effectiveness of our promotional campaigns. We prohibit web beacons on our sites from being used by third parties to collect or access your personal information.

Contact Information

NDSS and our affiliates using DonorDrive® welcome your comments regarding this Website Privacy Policy. If you believe that NDSS or our affiliates using DonorDrive® have not adhered to this policy, please contact buddywalk@ndss.org. We will use commercially reasonable efforts to promptly determine and remedy the problem.